Not mer-related, but it needs to be shared

[Mermaid Adriel]

So, yesterday I was watching at an Italian TV show, and it showed the story of a girl called like me who has an unknown disease: I ask everyone to share the following video for finding a name for this disease.
It's with english sub.
https://www.facebook.com/video.php?v=10152848329080530

[Echidna]

poor girl!
It sucks to be ill and no doctor/hospital is able to help.

The illness sounds very much like the TTN gene mutation though.
Science has only discovered this recently.
There are many different mutations possible, but they all affect the muscles (dystrophy), the heart, and the respiratory system.

It's hereditary, and probably not much to be done about it.
Research is sadly mostly done on stuff that can be used for profit, not for helping a few people out. :(