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View Full Version : A Medical Condition For Pro Mers to Be Aware Of



Mermaid Galene
01-07-2015, 10:04 AM
I suppose I could have put this in the Vent About Your Health thread, but this information could spare pro mers serious medical difficulties, so here you go.

Last month, I had an absolutely delightful time performing at a local indoor waterpark's New Year's Eve party. It entailed about two hours of photo posing and swimming with several hundred little kids and their families. Lots of close contact, being touched and hugged by hundreds of little hands. (And I loved, loved, loved it!) At home after the gig, while I was washing my tail and equipment, I became aware that my right ear was filled with a continuous, staticky white noise, and I couldn't hear much of anything else in that ear. I assumed it was a little water trapped behind the eardrum, figured it would eventually drain out, and proceeded to ignore it for 4 days.

On day 5, the problem had not improved, and I began to get a little worried. I was scheduled to fly in a few days to visit my Mom in Alabama, and I wasn't sure if flyiing was an okay thing to do. So I sat down and googled my symptoms, going straight to the medical literature. (I have most of a PhD in Veterinary Physiology, so I always delve deep when researching a medical problem.) I came across a reference (http://www.washingtonpost.com/wp-dyn/content/article/2010/07/26/AR2010072604734.html) to Sudden Sensorineural Hearing Loss. And then I got REALLY worried.

I made an appointment with the first doctor I could get at our local clinic. And that led to emergency visits to a Hearing Assessment clinic followed by an ENT visit. (Kudos to Hudson Hospital for getting all of these visits arranged, without prior appointment, within an hour of my initial family doc visit.) The diagnosis? I was 100% right, sadly. I have SSHL in my right ear, with profound hearing loss in the mid-frequency range. The audiologist remaked that she had not seen an audiogram like mine in many years.

What caused it? No one know for sure. The most popular current theory is infection by one of a family of Herpes Simplex Type 1 viruses. This group includes measles, mumps, chicken pox, and cold sores - all ailments that children are prone to carry. I most likely was infected by one of those adoring little kids at the waterpark.

SSHL also has been linked to poor pressurization during air travel, pressure problems during swimming or diving, and even common viruses like flu, cold, etc. Sometimes it is the result of a tumor on the nerve that links the inner ear to the brain, so an MRI is often done when SSHL is diagnosed. (I have one scheduled in about a month.)

Prognosis for recovery? That depends on a bunch of different factors including age, severity of hearing loss, particular frequencies in which hearing is lost, and how quickly the problem is diagnosed and treated. My particular combination gives me something less than a 50% chance of recovering my hearing in the right ear.

And here is why I say to you, if you come away from a gig - particularly one including close contact with children - with hearing loss in one ear, usually accompanied by ringing or buzzing in the ear, GET THEE TO A DOCTOR! Because you have a window of only 7-14 days during which treatment might help your hearing return. In many cases, if no treatment is received, or if it is started after two weeks from onset of symptoms, the hearing loss will be permanent. The treatment is massive doses of steroidal anti-inflammatories for two weeks or more. (I have just started on high dose prednisone, which I must continue for a month.)

An innovative, adjunct treatment which I am undergoing is called Constraint-induced sound therapy (http://tinyurl.com/krtbddh). When hearing is suddenly lost in one ear, brain regions that normally process signals from that ear are hijacked by brain areas which process input from the good ear. This can actually cause the brain to forget how to hear in the affected ear, even if steroid treatment does reduce inflammation of the aural nerves. Thus, I am spending 6 hours of every day for the next month with my good ear plugged so it can hear virtually nothing, and an ipod attached to my damaged ear. The constant barrage of music forces the brain to keep paying attention to that ear. (And the music is a great stress-reducer, too!)

SSHL is relatively rare - depending on the study, estimates range from 5-160 people in 100,000. But it is probably underreported, because most general docs don't know about it, and many people with sudden hearing loss ignore it until it's too late. I hope none of you ever face this disease. But if you do, I hope this information will help you to quickly recognize SSHL and get immediate emergency medical care.

I am a professional singer as well as mermaid, and the loss of hearing in one ear is a serious, sad handicap for me. Whether my hearing returns or not, I will adapt and continue to do what I love. But right now, I will take all the healing energy, virtual hugs, and cheerleading my mer family can send my way! Thanks.

Echidna
01-07-2015, 10:28 AM
:jawdrop:
HORROR!

I haven't heard of that one (and I've researched about every bad thing that can happen, because I cannot afford my health to deteriorate), thanks you shared!

I know why I don't do kid gigs, and perform in a safe distance from the audience :p
Just too chicken to face all the germs.
My ears often act strangely, because I have Lyme and it affects the ears a lot (and the eyes, heart, brain, skin...meh), it's a lot better since I use earplugs. Before, I had a fever every single time after I dived!

I hope you get your hearing back soon, and all will be well again.
I wish you all the best!

PearlieMae
01-07-2015, 10:40 AM
If anyone deserve a hug right now, it's YOU! :hug:

Best thoughts for a speedy recovery!

Talia
01-07-2015, 10:59 AM
I'm so sorry this has happened to you, Galene!

Thank you for sharing. Best wishes for a speedy and total recovery. :hug:

AniaR
01-07-2015, 01:08 PM
This is horrible. I have had some hearing loss my whole life I'm not sure if I'd notice a diff in me. Do ear plugs help?

Wishing you a speedy recovery!!!

Sherielle
01-07-2015, 01:24 PM
I remember reading about your post for that gig. And now this. And to you! I'm so sorry and sending positive, healing vibes. I have tinnitus, but I couldn't imagine the hearing loss.

Mermaid Galene
01-07-2015, 01:26 PM
Thanks, everybody. This is kind of a sudden, shocking adjustment for me. (Though I'm not depressed about it - just feeling challenged and completely thwacked-exhausted from fighting the virus and from the huge doses of steroids!)

SSHL is a really insidious disease, and there's pretty much nothing that can be done to prevent it. Earplugs wouldn't really make any difference; herpes simplex viruses are killed by chlorine, so it's generally not spread in pool water. But if a child who has measles, chicken pox, etc, - even if they're not symptomatic - touches you after getting saliva or snot on their fingers, you can contract that virus. The other tricky thing is that almost everybody has these viruses in their body. They can lie dormant for years and then suddenly activate, causing shingles or SSHL. And, too, I was in the hospital ER for a recurring small bowel obstruction last month, so it's possible I picked up a bug there. But most likely I got it from kiddie hands at our gig.

Still, I don't regret becoming a mermaid entertainer for children. For me, the rewards are worth the risk.

Mermaid Galene
01-07-2015, 01:30 PM
Tinnitus is a common feature of SSHL, so in my affected ear I hear a constant wall of white noise punctuated by occasional ringing, depending on what ambient sounds make it through the mush. And there's sometimes this weird clacking that, for all the world, sounds like a herd of skittering crabs crawling around the room clicking their claws at me!

Mermaid Galene
01-07-2015, 11:30 PM
There are, of course, many kinds and locations in the body for neuralgia. The effect of exercise probably depends on the specific situation. For example, exercise has no effect on trigeminal neuralgia (facial nerves). Neuralgia in a limb might actually benefit from swimming. My own experience with various neuralgias is that their occurrence is mostly unaffected by movement one way or the other. The pain arises from a malfunction of the nerve/neurotransmitter system itself.

My ear problem is actually not a neuralgia; there is no pain associated with SSHL. It is, instead, a neuritis; the hearing loss is due to swelling of the auditory nerves.

Mermaid Galene
01-07-2015, 11:35 PM
Hmm. My last comment was in response to a question that appeared in this thread and then disappeared. Oh, well.

Mermaid Galene
01-08-2015, 11:36 AM
My hearing has improved! O frabjous day! Callooh! Callay!

After the third dose of prednisone, I estimate I've recovered about 80% hearing in the right ear. The white noise and clicky crab claws are still there but quieter, sounds are less distorted, and I can triangulate location of sounds again.

Three cheers for prednisone; for expeditious medical response; and for the internet, which gave me the knowledge to act quickly before the short window for effective treatment closed!

Now, we can't party too hearty just yet. We won't know if this recovery will hold until after the full course of steroids has been completed, my hearing is tested again, and an MRI is done. Sometimes the hearing loss recurs as the steroid dose is tapered and discontinued. Sometimes there's a nerve tumor that briefly shrinks from the anti-inflammatory meds, but then starts growing again. The relapse rate is higher in my age cohort, and I'll have to be followed for a year to watch for signs of recurrence.

Right now, there's still a war going on between a rogue virus and my immune system. (That virus may, in fact, always be there.) And I'm still pretty thwacked from the prednisone. So I must take very good care of myself, get lots of rest, and avoid stress until the steroid treatment is over.

But, hey it's GOOD NEWS!! I'll take it!

This is me:


http://gifrific.com/dog-doing-backflips/

Talia
01-09-2015, 11:36 AM
Galene, what great news! I am happy to hear that you are better.

Huzzah for prednisone!

Echidna
01-09-2015, 12:39 PM
yay!
I had a feeling you'd get better, with your speedy response and all.

Rest yourself, don't fret too much, and give your body time!
As I sadly have lots of experience with viruses, bugs and crap, I recommend avoiding any exertion, loud noises, and water contact (plugs).