Vent about your health

[Raayvhen]

In stuck on my couch with an ice pack permanently on my face. I'm incredibly swollen from surgery and my nose keeps bleeding. I can't drink without feeling like I'm choking.

[Mermaid Wesley]

Wesley: The binders I've been using were supposed to be safe to use, at least from what I found out from researching different ones. But I just thought it weird that it was only after 3-4 years of binding that my ribs started looking a little funny to me; dipping down on one side, flaring up, and dipping down more as you go down the ribs. But only on that one side. And the doctor says there's nothing wrong with them. Idk what's going on with my body, but the pain doesn't seem all that bad some days, and then others the slightest movement sets everything off on that one side.

That's no good. I hope you figure it out! If you've done your research on safe binding then you know more than me, I've only got it on word of mouth. Maybe just rest and ice is all you can do.


Sent from my iPhone using Tapatalk

[Mermaid Lily_Pad]

A dislocation doesn't show up, usually because it relocates right away. Honestly I would check in with a PT or a chiropractor. Believe it or not I have had more luck finding out what is wrong with my body from them then from normal doctors. When I was 18 or so I messed up my shoulder. I went to the top orthopedist in the area and he said "there is nothing wrong, it's just a muscle spasm", then he sent me to PT, they took one look at me and sent me back to him (Same building) and he said.."oh it's just a strained tendon....back to PT...and again they sent me back to him telling him that there was more damage then he thought. After about...ohhhh 5 months of this I was working with a friend who happened to be a message therapist. I was rubbing my shoulder and he came up behind me and started to message my next and shoulder, then felt down my back and said "You know you tore your trap muscle?" I was like..."did not, my doc says it is just a pulled tendon"...he says..."Noooooo I can feel the space in the muscle where it is torn apart. Then he pushed on it..and ooowwwyyyy....I went back to PT told them what he said, they sent me to the doc who FINALLY really took a look at me and said. "Oh yeah, you tore your rotator cuff, your trap muscles, and damaged the nerves in your neck. When I asked him what I should do he says..."You waited to long, there is nothing we can do about it now"....If looks could kill that man would be dead.

The Second time a doc was clueless was when I injured my knee. They did MRI's and he said.."Oh it's just a strain, go to PT"... I went to a new Physical Therapist who took a look at the MRI and said..."You tore your minicus" NO I didn't! The doctor said it was a strain!...Then he pointed out the exact place, plain as day on the MRI where it was torn. Even I could see it. He then gave me a card to a new doctor. I learn right then that the best people to find a doctor from are PTs because THEY see the patents after the surgery's and they know which ones make full recoveries, and which ones have to do more surgery because the surgeon was clueless. The new doc had me in surgery ASAP and my knee is all better.

[Mermaid Sirenia]

I have...

A - A heart disorder (dilated aortic root) which makes my heart beat really really fast when I'm very active, so I can't play sports.
B - A connective tissue disorder which is kind of like Marfan syndrome if you've heard of it, but it doesn't have all the qualities. I'm really weak because the connective tissue, as the name implies, connects the bones.
C - A bone disorder (I don't know what it is)
D - I get random debilitating, almost migraine-like, headaches, sometimes twice a week, which force me in bed for the whole day. The cause is unknown.

Could the headaches be cluster headaches? Clusters are WAY worse than a migraine, and cause people to not be able to do anything they're in so much pain. They don't know the cause of it, or the cure. It runs in my family, and as of right now I don't have them, but I have signs that it may happen in the future. My mom has them the most, and they tend to last a week for her


~Mermaid Sirenia~

[Raayvhen]

Sexy post surgery bruises...

[maressa]

Held off on posting in here just because I never really know what to say about my health, but it came up in another forum.

This month marks 4 years ago I was diagnosed with MS, and it's just been... weird. It's weird to be a young person with a health issue, because other people your age doesn't understand or know how to react when things come up. I was hospitalized last year because some of the effects of my flare-ups is the loss of the use of my legs, hands, and double vision... and everyone looks at you like a stray dog. Sometimes all I want is just a squeeze on the hand, a smile, and to be told that it's ok to relax and watch TV until I feel better.

It's also weird... and incredibly frustrating... to have an invisible illness, because I'm 5'11", energetic on good days, and 125lbs... which to anyone else looks like a healthy young lady. MS is sporadic, and hits at random times in random ways, in any form from sudden and intense nausea to headaches to tingly limbs... and when you SUDDENLY get sick, people get skeptical, especially when you were fine just moments before. It's hard to explain that I don't have nay control over it and even though I look healthy, I don't feel that way.

MS has changed my life in a lot of ways, some for the better- I wasn't quite so driven before being shown that I have an expiration date at a young age. It also keeps me from applying to dead-end jobs and wasting myself, because I MUST have good health insurance, or else. In order to care for myself I had to learn to be organized, schedule my life in advance and make sure everything is in place. I value the people in my life and the times when I feel good more than I ever had before, and before I was diagnosed I was always confused about why I felt the way I did. Knowing the reason and knowing that it was found early enough to be treated is a comfort to me.

Anyway. A judge-free zone to ramble in is very nice and refreshing. Thank you Raina, and strength to all you other strong mers dealing with the fun little things life throws at you. <3

[Mermaid Wesley]

First migraine today. FREAKING SCARIEST THING IVE EVER EXPERIENCED. Between the weird vision spots, inability to read think or speak correctly, and numbness in my hand face and tongue, I thought I was dying. Misery.

[Mermaid Galene]

I can totally empathize, Wesley. I've had migraines for 27 years, and they can be pure hell. Preventives and treatments today, though, are so much better than they used to be. If this happens to you again, see a neurologist!

[Mermaid Wesley]

I did end up going to urgent care and now I'm all better (for the time being) why do people call them "migraine headaches" when that's hardly the half of it? I was crying my eyes out in the car after leaving work because I was scared and so confused. So to any future migraine sufferers out there: migraines can look similar to strokes. Yes you see things in the corners of your eyes etc. Your brain sortof actually stops hurting. And this can all be before the head he even starts. I actually went completely numb in exactly half of my face. Including half of my tongue. On and then I threw up five times. So yes if i get another one I'll be looking into preventatives. I was doing a lot of small, detailed, hand sewing yesterday and I'm thinking that could have triggered it. Unfortunately I was planning on using yesterday and today to finish the meticulous hand sewing. I have a meet up tomorrow and I wanted to have a new sparkley top.
I think I might wear it anyways. I've been sewing symmetrically do it doesn't necessarily look
Unfinished oh I'm going to stop typing my head is hurting a little time for some meds. WSH ME LUCK

[Echidna]

I actually went completely numb in exactly half of my face. Including half of my tongue.

I frequently suffer from migraines bad enough to make me sick, and have all the vision problem things before it even starts etc, but what you're describing sounds more like a small stroke.
I know some "migraines" can lead to (or be the aftermath of) a minor stroke.

I'm pretty sure I had one or two already (everything went black while I was lying in bed doing nothing, then it felt like I was rapidly falling down several meters, and simultaneously it felt like someone dealt me a blow to the head but from the inside).

It's also a common thing for people with my illness, clinics here run CT scans regularly on patients with the disease to see how many strokes they've had already.

It's scary stuff, especially as there is nothing one can do about it, but it's something to keep in mind-
maybe there are preventative measures you can take for your condition.

[Mermaid Wesley]

Apparently the numbness is a part of a specific kind of migraine. I asked my doctor and he did say not to worry about stroke since I have all excellent health and I'm young. He did tell me to call if it happens again etc but I feel almost back to normal this morning. Thanks for the concern girlie im on top if it (and I have insurance)

[Mermaid Lily_Pad]

Wesley I hope you feel better soon. I get migraines but I don't get the halo. I get sensitivities to sound, smell, and light. I don't get sick but the pain can be so bad I want to chop my head off LOL.

On another note. I am going to my first Endo support group meeting tonight! I am really excited to meet other people that I can relate to, and who can relate to me.

[Mermaid Galene]

This is a very good organization for migraine sufferers to join. They are a gold mine of information, including the latest treatments for migraines and other chronic headaches.

http://www.headaches.org/

I've been a member for almost 30 years, and I've learned a lot of things that have actually helped control my migraines.

[Mermaid Wesley]

Thanks!

[Raayvhen]

The past 18 hours have sucked! In the middle of our first proper night out since my surgery I got horrible cramps. Like my uterus is trying to wage war on the rest of my body. They haven't stopped. I also developed a (tmi?) huge case of stabbing gas that kept me up all night in addition to the cramps. The gas hasn't gone away but it's improved. At one point last night I got up to go to the bathroom and ended up curled up on the floor clutching my stomach crying. Now that things are kind of better I decided to work on sewing my tail and after about 20 minutes my sprained rib decided to throw a bitch fit and be incredibly painful to the point of nausea. I'm now laying in bed waiting for my dad to get back from riteaid with a pain patch for my ribs.

[Mermaid Zaffiro]

So many problems ... you have all my support,mer-friends.
I have fibromialgya,and I suffer from a severe degenerative disease of the back: my back is still (by magnetic resonance) like a person of 80 years... I did to make a surgery,but the solving is uncertain. >-<

[Meronica]

I've had migraine headaches since I was about 12 or so. Only recently started getting treatment for them. Propanolol is a godsend-- I take 40 mg a day and so far haven't had a bad migraine attack since taking it. I highly recommend asking your doctor about trying it if you get as many migraines as I was getting this summer. It's simply no way to live. I'm also on Sumatriptan as a pain killer to be taken at the onset (aura phase) of a migraine-- the only problem is that my insurance only covers 9 pills every 30 days, or they're like $250 for that quantity...so I need to ration them. :/ I'm currently out until I can get a refill on September 19th. The American medical system is so money-hungry and just...sick. I hope that the Propanolol keeps working for me in the meantime.

[Amphitrite]

I'm blanking sick and tired of having a brain injury. Being treated as 'less than' and 'stupid' and 'helpless, hopeless, as a FRIKKIN child for goodness' sake! I'm 29 YEARS OLD! Figure it out retard! Stop degrading me by treating me like one of your little brats! >.< (ranting. Sorry).

[deepblue]

If one more person assumes I just guessed about the allergies I have and makes a helpful suggestion about how it's probably 'this other thing or that', I'm going to snap.

I was diagnosed by an allergist. Blood and skin tests were done. I didn't just guess, so no, I do not have some other condition which seems to have every symptom on the planet as part of the diagnosis people are giving me.

I got away with eating a lot of things that fall under the should not eat category for a long time, but I did not realize, either, how many things I was eating that were part of the problem, which is probably why it got so bad suddenly. B12, vitamin D- just two examples of vitamins (when created in the lab and used as supplements) produced by fermentation processes, which if I eat in foods make me sick as the proverbial dog. Anything produced using acetic acid, anything with vinegar in it, anything with ANY thing produced by a fermentation process causes me an allergic reaction if eaten. Anywhere from achey the next day to isntant hives, sore, swollen throat, wheezing... always with migraines. It's scary, actually, and I'm glad I carry around an epi-pen.

My diet is boring as heck now, but I've minimized my migraines and that is awesome. Meanwhile, I've managed to level up my nutrients again, blood tests are good, and only one level of vitamin is really low, and I'm tackling it from all sides. Luckily I am really into cooking, so I can make my own home made, non-fortified versions of things I was buying in stores, but it is very time consuming... and harder than before I was a mom.

But seriously. When people say, "No thanks," to food, just let it go, people. Please don't ask why. And if they answer, "allergies," please let THAT go. I'm at this point where I just say, "I don't talk about it, thanks." Because of all the free advice from well intentioned people who have NO CLUE what they're talking about.

[Aziara]

If one more person assumes I just guessed about the allergies I have and makes a helpful suggestion about how it's probably 'this other thing or that', I'm going to snap.

I was diagnosed by an allergist. Blood and skin tests were done. I didn't just guess, so no, I do not have some other condition which seems to have every symptom on the planet as part of the diagnosis people are giving me.

I got away with eating a lot of things that fall under the should not eat category for a long time, but I did not realize, either, how many things I was eating that were part of the problem, which is probably why it got so bad suddenly. B12, vitamin D- just two examples of vitamins (when created in the lab and used as supplements) produced by fermentation processes, which if I eat in foods make me sick as the proverbial dog. Anything produced using acetic acid, anything with vinegar in it, anything with ANY thing produced by a fermentation process causes me an allergic reaction if eaten. Anywhere from achey the next day to isntant hives, sore, swollen throat, wheezing... always with migraines. It's scary, actually, and I'm glad I carry around an epi-pen.

My diet is boring as heck now, but I've minimized my migraines and that is awesome. Meanwhile, I've managed to level up my nutrients again, blood tests are good, and only one level of vitamin is really low, and I'm tackling it from all sides. Luckily I am really into cooking, so I can make my own home made, non-fortified versions of things I was buying in stores, but it is very time consuming... and harder than before I was a mom.

But seriously. When people say, "No thanks," to food, just let it go, people. Please don't ask why. And if they answer, "allergies," please let THAT go. I'm at this point where I just say, "I don't talk about it, thanks." Because of all the free advice from well intentioned people who have NO CLUE what they're talking about.

Hey, I'm with you there. What I get sick of is the well-intended pity. "Good grief, what DO you eat??" or "I would starve if I tried to eat like you do" etc etc. Shut up people, you're only making me feel like a freak. Worse are the idiots who say something like "Oh, you can't eat wheat? So you can have white bread instead?" Or the 'Marie Antoinette syndrome' "You can't have bread? Ok, have some cookies!"